← Return to Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

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@harley22

Wow I cant believe you and I have similar symptoms.when I broke my foot the first time, I didn’t even fall, I was just walking and I started to feel like I was going to fall, and my husband caught me.
When we looked down,my right foot was facing sideways, and the bone was coming thru my ankle.
Then that’s when everything went downhill.
Screws and pins and plates were in and out numerous times.
Screws backed out of my heel and bottom of my foot.
As soon as it healed, it broke again., twice.
I now wear an Arizona brace to keep my fused ankle in place.
I was told if it broke again, they could not operate or put any hardware in, so I can’t do much of anything now.
I can only wear sneakers with my brace, and I can’t go to the beach or in the ocean, I’m not supposed to put any pressure on my ankle.
I just passed the 5 yr anniversary of my first break this past March.
I went thru several rounds of IVIG with no improvement in my symptoms,so I stopped it.
I hope it works for you!

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Replies to "Wow I cant believe you and I have similar symptoms.when I broke my foot the first..."

You are the first person to post since I joined about 2 months ago. I've been on Infusion therapy since 2017, but I'm still progressing slowly. There's not much info about CIDP on the internet, but go to GBS/CIDP FOUNDATION.