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Autoimmune Diseases | Last Active: Oct 30 1:08pm | Replies (32)
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@goldacharna

Well, finished my initial 4 days IGIV treatment yesterday, felt some tiny improvement after day 3, but yesterday after infusion and all day today it’s much worse, actually my symptoms are worse I’ve had it since the problem started. So upsetting. Has anybody had anything like I’m describing? Thank you in advance for your feed back.

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Replies to "Well, finished my initial 4 days IGIV treatment yesterday, felt some tiny improvement after day 3,..."
kimegraves | @kimegraves | Jul 15, 2023

@goldacharna
I am so sorry to hear that the infusion has not helped. Please give it some time and perhaps it will improve. A couple of things I did not mention is that when the weather is bad I always have symptoms regardless of the date of my infusions. Also, I have stopped all alcohol use and I have to exercise several times per week or I have more pain and parentheses in my extremities. Also if I have high sugar intact my symptoms are worse.
I am so sorry you have to go through this……. My though and prayers are with you.
Are you taking any medications
such as gabapentin?
Kim

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harley22 | @harley22 | Oct 30 1:08pm

I also had no improvement after 8 mos of IVIG infusions.
They did nothing for me at all.
Very frustrating to say the least!

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