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Tymlos side effects I've encountered

Osteoporosis & Bone Health | Last Active: Oct 27 11:00am | Replies (284)

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@windyshores

@ymv I have gone up and down a lot. I had excellent gains on 6 or 7 clicks and have never done 8. For me the difference between 7 and 8 clicks in terms of side effects is huge.

ps If I have something important to do, some days, I do 6!

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Replies to "@ymv I have gone up and down a lot. I had excellent gains on 6 or..."

I have been having no side effects with 7 clicks, to the point that I worried the pen might have been frozen during shipping. So to test it, I did 8 clicks today and am overwhelmed with side effects. I cannot get over the difference between 7 and 8.

My endocrinologist, who is chief of endo at a top hospital in the country, told me yesterday that my story has "inspired" him to recommend ramping up to other patients. He and I have struggled for 15 years to get me on something I could tolerate. Result was several fractures. He is very happy with my improvements.

ps due to changing kidney values I am staying on Tymlos past 22 months, until my nephrologist clears me for Reclast. My endo will do a 20% test dose to see how I do. He is ordering a slow infusion and I will hydrate a lot before, during and after. Hoping for Sept, He said there is a study out on Forteo for 36 months. After the first year gains may be small but not zero, he said.