← Return to Caregivers: Early Onset Alzheimer's, diagnosis age 19 to 65

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@ilikegreen

Hi, ALZConnected from the Alzheimer's Association is a free online community where people living with Alzheimer’s, caregivers, families and friends can ask questions, get advice and find support. The link is https://alzconnected.org/ . There may be a local chapter in your area too, see https://www.alz.org/local_resources/find_your_local_chapter . And they offer support groups for caregivers and individuals living with Alzheimer's or other dementia. All support groups are facilitated by trained individuals. Both in-person and virtual support groups are offered. See https://www.alz.org/events/event_search?etid=2&cid=0 .

You might also find this health topics page useful: https://medlineplus.gov/alzheimerscaregivers.html .

Lastly, I posted this previously but it may help you also to suggest a book titled The 36-Hour Day, 6th edition. Originally released 36 years ago, this latest edition continues to provide relevant, practical, and up-to-date advice to those providing care to an individual with memory loss and still serves as the gold-standard care guide for dementia caregivers. If you haven't read it already it likely is available to borrow from your local public library to see if it may have some suggestions for you as well.


The authors describe in detail the changed behaviors a person may show, and suggests plans of action toward dealing with these behaviors to decrease stress in both the caregiver and the person who has dementia. It teaches financial literacy as applied to eldercare. Options such as adult daycare, at-home caregivers, and assisted living are analyzed, empowering the reader to make informed choices.

The authors also discuss the complex emotions that run through the heads of those who have dementia, includes redirection techniques, and emphasizes the importance of patience and empathy with those afflicted. It also enriches understanding of the biological components of memory loss to help one better understand the science of why people with dementia act the way they do. Many caregivers can benefit from the authors' study of the condition and how people can continue to thrive through it.

I hope some of this information is helpful to you.

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Replies to "Hi, ALZConnected from the Alzheimer's Association is a free online community where people living with Alzheimer’s,..."

@ilikegreen - thanks so much for this information. It is really helpful and I just downloaded the audio version of the 36-hour day...since physically reading a book has become difficult. Much appreciate you taking the time to send all of this information.