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Trigeminal, but not Trigeminal Neuralgia. What is it? HELP
Brain & Nervous System | Last Active: 2 days ago | Replies (45)Comment receiving replies
My insurance is changing within the next 30 days. This is a good thing. As soon as it does I will be call KU to get into a Neurologist there for a 2nd opinion. I am not interested in doctors throwing meds at a problem and when one works, them saying , I am not sure what is wrong with you, but this med works. So I guess you will be on it forever, goodbye. I would like them to go through the steps to rule things out and at least attempt to find the root of the problem. @caosborn if your trigeminal is responsible as I believe mine is, why is it so pissed off. And how do you calm it down?! It is a nerve so it is part of your nervous system. I know this started for me when I was under a tremendous amount of stress in my life. I am sure all of our nervous systems are taxed. The question is how do you calm down your nervous system when it itself is what is stressing you out now.
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A paper in the NIH library describing surgical treatment for TN can be found with the link below. It is rather lengthy and very thorough. The authors claim that 85% of TN cases are caused by an artery or vein rubbing on the trigeminal nerve. I have copied the conclusion to the article below. I have discussed this procedure with a surgeon at OHSU but, at the moment, prefer medicinal treatment.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9452382/#:~:text=Since%20then%2C%20many%20studies%20have,vessel%20from%20the%20trigeminal%20nerve.
CONCLUSION
The effect of MVD on TN has already been established. However, more advanced research is needed for clearer surgical indications, management of culprit vessels, and durability of the decompression materials. In the future, along with the continuous study on the pathophysiology of TN, a new MVD technique that is safer and can increase the cure rate should be developed.
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I wish I knew those answers! My understanding is inflammation is irritating the nerve. My headache specialist and I are still searching for reliable, safe, consistent relief. As I mentioned, Vyepti infusions are helping with the nerve pain. However, I am extremely sensitive to medications and that stymies any real progress for me.