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Mycobacterium Lentiflavum

MAC & Bronchiectasis | Last Active: Jul 26 4:07pm | Replies (12)
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@dltorres

Hi Sue, Is M. lentiflavum Harder to treat than MAC? My doctors are deciding whether to start treatment or wait until my appointment with NJH in August. I use inhalation tobramycin for pseudomonas, but also have bronchiectasis, bronchiolitis & a few other lung issues. I was treated for MAC about 2 years ago & kicked it with “the big three”. I am more worried now because my lungs are in worse shape & having a new MAC adjacent infection.

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Replies to "Hi Sue, Is M. lentiflavum Harder to treat than MAC? My doctors are deciding whether to..."
Sue, Volunteer Mentor | @sueinmn | Jul 14, 2023

Hi D - I don't know about "harder to treat" - it is just that a few different meds may be used. If there is any place to get the "exact" treatment for M lentiflavum, it is a clinic like NJH. Just remember, mycobacteria, with few exceptions, grow VERY slowly, so the risk of waiting a month or six weeks to start treating is low.

What would I do in your place? Use the Tobramycin - it at least will keep other stuff from growing. Do my airway clearance every day, using 7% saline (if tolerated.) 7% saline has been shown to suppress the growth of mycobacterium, and even reduce it in some cases. Wait to start any new antibiotics until after evaluation.

Are you comfortable waiting?
Sue

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