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Pulmosal vs normal hypertonic saline

MAC & Bronchiectasis | Last Active: Jul 31, 2023 | Replies (14)

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@fdixon63

irenea8 - I've had recurring Pseudomonas over the past 5 years since being diagnosed. I've asked my current pulm doc to prescribe 7% because of what I've read posting from those using it here on Mayo Connect. I've also seen some of the studies that support it. My previous doc did not have a problem prescribing it when I requested it. My current pulm doc says the science does not support that it is better than 3% so he will not prescribe it.
My thinking is that if it's not harmful why not let the patient use it? We're all just trying to get better. I'm sure I have pseudomonas right now (not on any meds) but quality of life is good and I want to keep it that way.

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Replies to "irenea8 - I've had recurring Pseudomonas over the past 5 years since being diagnosed. I've asked..."

When I originally asked my pulmo about 3 vs 7 he said the same thing but he would have prescribed it if i had asked for it! I cannot remember if he told me later on to try 7% or if I just did it on my own (ordered from Amazon)? But when I switched to 7% I had less exacerbations. It did help more than the 3% for sure. So I would not listen to that instruction and see how you tolerate the 7%. At first you might adjust to it. Now I have a prescription for Pulmosal 7% but I still use the Amazon brand also since I nebulize 1.5 vials in the morning session. I use one of Pulmosal and 1/2 of the Amazon brand afterwards just to extend my treatment time.

Hi Faye - My pulmo says the same, but shrugs and prescribes it anyway. I figure if NJH, Mayo and UT Tyler all say 7%, their collective experience tips the scale for me. My primary also told me she would do it if the pulmo didn't.
Sue