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DiscussionLesions on the brain and autoimmune disease
Autoimmune Diseases | Last Active: May 15 2:14pm | Replies (54)Comment receiving replies
Replies to "No I have not been tested for that well as far as I know at least..."
My husband also had lesions. He started with an unsteady gait and double vision which is what MS can present. At first they said it was lymphoma hiding somewhere and aggressively pursued that. It turned out that was not the case. They sent him home from the hospital after numerous MRIs, a brain biopsy and several lumbar punctures. They kept insisting it was between MS and Lymphoma. They said the lesions he had did not coincide with how MS presents lesions so they were very confused.
In November he had a relapse where he couldn’t walk at all. He went to Mt. Sinai in NYC where they again did numerous MRIs and blood and spinal taps. They sent all of the fluids to Mayo and they diagnosed it as GFAP.
He was put on high steroid treatment and anti rejection med and is now tapering them. They don’t know much at all about his disease, so we don’t know what the outcome will be when he is totally off the steroids.
I hope for your sake you won’t end up with this. Good luck to .