I have been taking IVIG infusions, with a break of 5 months due to another unrelated medical issue, since February, 2022. It is for one week a month, 3 hours, 5 business days. My infusions are give at a branch of Rhode Island Hospital, where Brown Neurology and my neurologist are. The infusions are based on your weight, so let them know if you cannot get up on their scale. I weigh myself at home.
Once ready for the infusion, I first get Tylenol and a Benadryl, Benadryl either as an IV or orally. The infusions are given in private cubicles there, so I can read or watch TV, or sleep.
I have not had headaches, S some report, and have suffered no other side effects.
My neurologist seems to be of the mind that if it seems to be helping, she will continue to order it.
She is also at Brown Medical School as a professor, so the research part of IVIG is interesting to her.
I am also on a Zoom meeting once a month with resources from The Foundation for Peripheral Neuropathy. I can let you know when we have our next Zoom meeting. There is also the Western Neuropathy Association which has Zoom support groups. Cornell Weill Medical Center in New York has a research center for neuropathy.
I hope this helps.