Hello @windyshores, It must be difficult to deal with the pain and not knowing the cause and how to deal with it. Hopefully you will learn more at your upcoming appointment. While we wait for members with experience to respond, here's some information from Mayo Clinic on scleroderma that may be helpful.

"Nearly everyone who has scleroderma experiences a hardening and tightening of the skin. The first parts of the body to be affected are usually the fingers, hands, feet and face. In some people, the skin thickening can also involve the forearms, upper arms, chest, abdomen, lower legs and thighs."
--- Scleroderma - Symptoms and causes: https://www.mayoclinic.org/diseases-conditions/scleroderma/symptoms-causes/syc-20351952