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How long did your doc have you on Tymlos?

Osteoporosis & Bone Health | Last Active: Oct 6 11:16am | Replies (53)

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@canadatx

Thank you for sharing . I’m so sorry. You mention you are being treated for necrosis of the jaw. Can you please share what this involves?
(When I asked my endocrinologist what she would do if someone started getting necrosis of the jaw she did not have an answer)

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Replies to "Thank you for sharing . I’m so sorry. You mention you are being treated for necrosis..."

Thankfully my dentist noticed bone sticking out towards back on one side during routine dental exam & referred me to an oral surgeon. This was adjacent to the furthest back molar that also had a bone spur and oral surgeon felt that it should come out along with removing the piece of bone. He kept an eye on while surgery was healing and was just an in-office procedure. Also did several CT scans in office to check if saw anything else & didn’t. Had it become worse or re-emerged an MRI would be necessary but it can be tough to find per another MD (rheumatologist)..Unfortunately a very bad side effect of bisphosphonates and prolia - Many say it’s rare but oral surgeon said it’s not that uncommon but then he sees the cases so hard to know the percentage of pos cases. I also took prolia for many years and ever since it was released so like over 10 years which I’d think also makes a difference..