← Return to Pheochromocytoma: Anyone being treated for an adrenal mass?

Discussion
Comment receiving replies
@jimmysherif

Hello everyone

I wanted to tell you all about my journey. My blood pressure was around 130/97 for a while. The doctors advised changing lifestyle, engaging in regular exercise, and reducing salt consumption. However, despite using the suggested strategy, I was unable to control my blood pressure, and it really became worse. Then they dug into the specifics and began with an echo, an ultrasound of the kidneys, and thyroid testing. I was given the order for a CT scan after the ultrasound revealed a tumor on the right adrenal gland. My scan revealed a 5.5*5.5-cm mass, according to the results. In addition, testing for cortisol, alderstrone/renin ratio, and 24-hour urine were performed.
The results of all these tests came back within and in some cases below normal, which shocked the doctors. They informed me that the outcome in pheocromocytoma instances is typically 2x or even 3x. They did, however, advise removal of the tumor due to its size. I am looking forward to having surgery on July 20.

Jump to this post


Replies to "Hello everyone I wanted to tell you all about my journey. My blood pressure was around..."

Hi @jimmysherif
I have a very similar situation. I had open heart surgery almost 3 yrs ago for congenital issues- one of my follow up ct scans showed a right adrenal mass- much smaller than yours -1.5. But it had a very high score on the ct scan like a pheo- so I did all the additional labs, urine tests, all normal. But because of the scans I have been advised to have it removed. I meet with the surgeon at the end of the month. Keep us updated on your recovery! Best wishes and positive thoughts your way!
Jeane