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@kcole82

So for 6 years now I have had weird tingling, numbness, pain in my face and sometimes down my arms and body that has changed over the years in the way it feels and the intensity, fluctuating from better to worse and back. It seemingly happens out of nowhere and 90% of the time I'm sitting or laying down. It feels like nerve and joint pain. I get really hot, my eyes water, I get dizzy and confused. I've seen 6 neurologists and they have either said it was PNES or they didn't know and sent me on my way. Has anyone else experienced weird feelings in their face and body also accompanied by weird uncomfortable emotional feelings and fleeting thoughts- like trying to remember a part of a dream of a dream? Been on meds, SSRIs are not working and actually make symptoms worse. Any insight or shared experiences would be greatly welcomed and appreciated. Thank you- K

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Replies to "So for 6 years now I have had weird tingling, numbness, pain in my face and..."

Hello @kcole82 and welcome to Mayo Clinic Connect. I feel for you having been going through this for so long and without some answers to help better understand what is going on.

I wanted to connect you with others who have experienced similar symptoms, so you will notice I have moved your post into an existing discussion that you can find here:
- Can I have trigeminal neuralgia or neuropathy and body paresthesia?: https://connect.mayoclinic.org/discussion/can-i-have-trigeminal-neuralgia-or-neoropathy-and-body-paresthesia/

I did this with the hopes that members @tinatoren @ekelks and @SusanEllen66 could come back in to connect with you and share what they've learned along their journey.

Have you considered seeking another opinion at a multidisciplinary hospital where physicians work together to come to a diagnosis?

@kcole82 hi sorry you are having such a hard time! Would you mind telling me what PNES stands for?

Thanks, Susan