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Peritoneal Cancer: Anyone else?

Cancer | Last Active: 3 days ago | Replies (82)

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@princessmaza

I had my first bout with appendix cancer in 2015. I had an appendectomy, hemicolectomy and 12 rounds of chemo at that time. I was doing quite well and cruising along until my recurrence in 2021. It came back on my ovary. As strange as it sounds, my husband and I were somewhat hoping it was ovarian stage 1. Unfortunately, it was stage 4 appendix adenocarcinoma (goblet/signet cell). It's rare and aggressive cancer without much encouraging data. I went in for cytoreductive surgery with heated intraperitoneal chemo. I had a radical hysterectomy, choleycystectomy, peritonectomy, omentecomy. I will never forget how many times I was told this was a palliative surgery...that I would never be cured...that I needed to "get my affairs in order". I think I still have a little PTSD from all those conversations. I got lucky as the disease was not as widespread as they thought. I got to keep my spleen and did not require an ostomy at that time. It was a tough diagnosis and subsequent surgery. I'm 2.5 years out with NED. I've plugged back into the living world and I am finally feeling a bit more like my old self. I find the emotional and psychological aspect of carrying a stage 4 diagnosis to be the most challenging part of this entire ordeal. It changes you and it can be a little isolating. I'm still relatively young. I had to bid farewell to my fertility, my dreams of motherhood and learn how to live again in this new reality. Sometimes it seems unreal...like a bad dream; but then I look in the mirror and the scars remind me. I'm grateful for the grace I've been shown.... but wow....what a ride it's been!

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Replies to "I had my first bout with appendix cancer in 2015. I had an appendectomy, hemicolectomy and..."

@princessmaza Thank you for sharing your story and journey. Your strength shines through!
Ginger

I can relate so much to your story and all the losses, ptsd and indescribable feeling of being yet not being connected to the world. I too lost my fertility and was told with my diagnosis not to expect to be around for than about a yr. @princessmaza. and @turbo48 what can I do to help or what are you most wanting to know?

Congratulations on your recovery but also your amazing strength and attitude 🙏❣️. I was diagnosed with stage 4 appendix cancer in 2021. Had debulking surgery to remove a mass, my ovaries and a hysterectomy. 6 months chemo and immunotherapy followed then HIPEC + CRS + peritonectomy. I have been 2 years NED with quarterly scanning. I’ve been told I’m not cured.

You are absolutely right how hard the mental side of this illness, diagnosis and treatment are.

We are so lucky to have such better treatments and they keep improving. Prayers up for continued health! 🙏❣️