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@lls8000

@hlolson, I have the ALK gene mutation, and my history seems similar to yours. I take a different targeted therapy (alectinib). Critzotinib can be used for ALK too, that's why I asked. I hope they find a therapy for you that can keep the brain mets away. This disease seems to let us get comfortable for awhile, and then we're back on the roller coaster.

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Replies to "@hlolson, I have the ALK gene mutation, and my history seems similar to yours. I take..."

It was late when I replied last I meant to say I have the Ros1 mutation. I agree, it's so frustrating to know these drugs will not work for longer periods of time. Hopefully it gives the researchers to find different drugs that will continue to work. I pray that you are responding well.