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Squamous Cell Vulvar Cancer: Who out there has this cancer?

Gynecologic Cancers | Last Active: 3 days ago | Replies (204)
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@mdr3

It felt great to walk around! The hardest part is keeping track of where the drains are and changing position from reclining to sitting, and then standing. I will be happy to speak to anyone on the forum about this, since there is so little written about this in comparison to other gyn cancers.

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Replies to "It felt great to walk around! The hardest part is keeping track of where the drains..."
Helen, Volunteer Mentor | @naturegirl5 | Jul 13, 2023

@mdr3. This is so good that you walked around today. Thank you for offering to help others in this Support Group and discussion.

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mezzojo | @mezzojo | Jul 14, 2023

Hi. I also had to deal with drains. I didn’t really have pain at the drains, but they definitely make life difficult. I’m not sure if they did this for you, but when I was in the hospital, they put some surgical tape around the tubes and pinned the drains to my hospital gown. When I got home, I kept them pinned to my shirt. That really helped avoid tugging on the drains when I moved around.

Good luck with your recovery.

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misstrouble | @misstrouble | Jul 15, 2023

I agree with the pockets being a good place to keep the bulbs...and remember...you can secure them with more tape . Mine always felt like they were tugging on the stitches that were holding the tubes...drove me batty. I did end up getting one taken out early because I am clumsy and seemed to be pulling at them too much while sleeping. . .

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