Thanks for your reply Andytheman! So you have had this with dissection for 2 years? Have you gotten a second opinion? It's tough because of the double rarity of this aneurysm + dissection, means less doctors with enough knowledge an experience, so finding the right one that will actually put themselves in your position. Sorry you are going through that, I have been panicking for just a couple days, so can not imagine. I did et a call back from the referral people who found a VS that will see me today, so i will post after that happens.