Hi to all. First I hope this is received in kind light intended as I just had another brain mri where you are not suppose to move yet I have my random spasms, stabbing pains with lovely electrical jolt feeling/falling/ spinning- head to toe . .
Common issue seems to be our bodies are so easily exhausted/overstimulated that our nervous system and cellular level needs resetting. Literally setting alarms for consistent nutritional small meals every couple of hours, closing eyes and doing absolutely nothing couple of minutes each hour with other time minimal task pacing and journaling to determine your particular triggers whether food, hours off your feet needed, sleep or not☹️, brain stressors like phone calls, appointments, bill paying. . . Literally only doing one thing a day and slowly adding each week to determine your “activity “ threshhold and not overdo creating constant setbacks and daunting symptoms like shortness of breath from just a wheelchair ride to doctor appointment. Breathing exercises, like meditation and box breathing, seem to really help reset nervous system and maneuver the anxiety our bodies symptoms create. Know its not easy to adapt to these extreme daily challenges so hopeful these techniques can help create a more manageable daily life to enable the slow and steady healing for our full recovery🌈 Best to all!