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Anyone have nutcracker syndrome?

Kidney & Bladder | Last Active: Feb 22, 2023 | Replies (46)

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@bpaz

Ah, I see! Thank you for sharing your story, and it is true... you need to be your own advocate.

So from what I understand, from research and from the vein specialist showing me the Nutcracker Syndrome (NCS) on my CT scan, in my case, it appears the Left Renal Vein (from my Kidney) is being compressed between my Abdominal Aorta and Superior Mesenteric Artery (causing the nutcracker effect). The Vascular specialist said he couldn't treat me and said I probably developed the syndrome when my veins and arteries were forming in the womb. I'm 32 and relatively healthy minus these issues.

I can't do the hormone therapy, as my PCP says it could cause blood clots and put me at higher risk of having a stroke. (I was also diagnosed with Pelvic Congestion Syndrome and May Thurner Syndrome, all at the same time of the NCS diagnosis). I haven't heard of a "Vascular Electo-physiologist", but I will definitely check that out! I am desperate for a solution here. Any treatment recommendations are welcome and if they helped or not!

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Replies to "Ah, I see! Thank you for sharing your story, and it is true... you need to..."

I am looking into this now as it is suspected that my daughter has NCS. there is a group in Maryland and in Texas that treat this with surgery. I didn’t save the information but I found it and I googled doctors that treat NCS