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Prednisone tapering is challenging. What does remission feel like?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 3, 2023 | Replies (209)
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@magluchi

I have been on prednisone for over 5 years for fibromyalgia. Several times I have tapered down and tried other drugs. The other drugs had serious side effects and I have none with prednisone. I am lucky that a low dose of 4 or 5 mg controls the majority of my Fibro pain. So, I have learned to live with the other fibromyalgia symptoms, because the pain is the worst.

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vellen | @vellen | Jul 13, 2023

I haven't noticed any relief from my fibro pain with the Prednisone, I wish it did. I still take Tramadol for that and will move on to Topamax soon for the fibro as well as to try to prevent migraines.

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vellen | @vellen | Jul 13, 2023

Is it possible that your fibromyalgia pain is actually PMR and that being treated with Prednisone, leaves you with Fibro pain? I ask because it can often be misdiagnosed and that you still have fibro pain with the corticosteroid.
"Drugs such as NSAIDs, opioids and corticosteroids have not been found to be effective for fibromyalgia pain.".
If it js PMR then it's a good thing you are on the Prednisone. But perhaps see about Topamax, especially if you're like me and can't tolerate the SNRI or SSRi meds.
Forgive me jf I'm off-base but obviously I have Fibro (20+ years now) and PMR came in end of May this year. I was sure the fibro was worsening until I couldn't move without pain or walk without assistance. It was because of the PMR.

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