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What do I need to know about NETS?

Neuroendocrine Tumors (NETs) | Last Active: Sep 11, 2023 | Replies (43)
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@chazzf

New to this forum. Had total bowel blockage which was found to have been caused by NET (they removed 9 inches of my intestines about a month ago). Official language:Metastatic Carcinoma/tumor with Neuroendocrine Features. Partially removed that tumor, but also found NET in lymph nodes and around liver. I'm getting my gallium arsenide PET scan this week.

I found the video very informative, so thanks for that. Looking forward to finding out more and getting thru this process.

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Replies to "New to this forum. Had total bowel blockage which was found to have been caused by..."
Teresa, Volunteer Mentor | @hopeful33250 | Jul 13, 2023

Hello @chazzf and welcome to the NETs support group on Mayo Connect. I'm glad that you found this forum, it really helps to learn from others who share this rather rare diagnosis. As you probably know, NETs are a rather slow growing cancer and often difficult to diagnose. I had my first surgery for a NET in the upper digestive tract in 2003 and my last surgery was in 2016, which makes me a 20-year survivor.

I am glad to hear that you will be getting a Gallium PET scan. This is one of the best scans in detecting these very small lesions. Here is some information about the Gallium scan,
https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/
Generally, after surgery of the digestive tract, we tend to eat smaller meals, and feel full quicker than prior to surgery. Is this true of you as well?

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