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@extracare808

I'm an NJH patient, and wrapping up almost 2 years on the Big 3. The last 11 months, I've also been on Arikayce. Been consistently negative since adding Arikayce and have had zero side effects (except intermittent hoarseness) With respect to nebbing, I've never been told to not do it late at night, and that's when I typically do it.

I also have bronchiectasis that is considered to be idiopathic, meaning, they have no idea what caused it. I believe it was cause by reflux, although all my NJH tests were normal.

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Replies to "I'm an NJH patient, and wrapping up almost 2 years on the Big 3. The last..."

All my tests were normal too....but I get heartburn from many foods for some reason. Unfortunately the Gastro dr I saw at NJH was as I have previously stated, very arrogant, intimidating and nasty to me. I was taken aback by his demeanor . He was aggresive..to say the least in his manner of speaking to me. He never once discussed reflux, my barium test results or anything else. He never discussed gastro issues, suggestions for diet, you name it. They really should oust him from his position at the hospital, because he is a bad seed. It's not a good reflection on the hospital. I wonder if they know what a S.O.B. he is. I went a long way, spent a lot of money, and emotions and energy..... only to see a doctor like this , and it really makes me mad. Sorry, I guess I'm venting AGAIN. If you go there, be careful if you are gonna see a gastro dr. Private message me and I'll tell you his name so you won't go through what I went through. I was thinking about writing a letter to the CEO of the hospital, but that kind of action always seems to bite me in the butt, so I think I will restrain myself. If you believe in Karma, he'll get his eventually. thanks for listening...this blog ...you guys taught me everything I know about Mac and bronchiestasis, and I will be forever grateful. love you all.