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How long did your doc have you on Tymlos?
Osteoporosis & Bone Health | Last Active: Feb 2 12:43pm | Replies (60)Comment receiving replies
Sorry, I noticed an error in my previous reply Re: Prolia. I was off Prolia for 18 months or a bit longer and did NOT go back on — Was supposed to say off Prolia for 18 months before started Tymlos! In between I was taking Evista for about one year but it didn’t help and my DEXA was down approx 10% so we discussed Tymlos since my sister mentioned as she had already taken it. Unfortunately I’m allergic to bisphosphonates so that’s not an option and I was also diagnosed with jawbone necrosis over a year ago which I was treated for. A side effect of both bisphosphonates and Prolia so not sure what I’ll do after Tymlos. Perhaps something new or more valuable research will be available within the next couple of years
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Thank you for sharing . I’m so sorry. You mention you are being treated for necrosis of the jaw. Can you please share what this involves?
(When I asked my endocrinologist what she would do if someone started getting necrosis of the jaw she did not have an answer)
@omgirl hi, how did everything go with Tymlos? I am in the same boat that you were. I stopped taking Prolia without a relay drug around 16 months ago and will be starting tymlos next week. I came across a couple of other people that were in the same boat as us and did great on Tymlos. Would you mind sharing your experience with me? Are you taking anything else now?
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@omgirl I have to do Reclast to preserve my gains from Tymlos. I have 7 spinal fractures. BUT my nephrologist is concerned about the effect on my kidneys.
We are all in a bind! My endo is going to try a test dose of 20% the usual dose. We'll see. He is nervous about it but there are no other choices.