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I have Dupuytren's Contracture Disease . How can I cope with this?
Bones, Joints & Muscles | Last Active: Dec 28, 2023 | Replies (92)Comment receiving replies
My Dupuytren’s developed before the a diagnosis of autoimmune disease was
considered. I have psoriatic arthritis with primarily enthesitis symptoms.
Bilateral carpal tunnel is likely all interrelated.
Keep active and stretch. The hand exercise ball is a good tension reliever in
the car. Treat underlying inflammation. Your doctors should look at all the
markers inflammation. People of European origin are prone. Research concomitant diseases for clues.
I felt gaslighted by my former rheumatologist when I questioned her diagnosis
of osteoarthritis. Be your own advocate and keep moving.
Replies to "My Dupuytren’s developed before the a diagnosis of autoimmune disease was considered. I have psoriatic arthritis..."
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As I wrote, I have an ANA of 1:5120 and the anti-centromere antibody is >8, the highest it can be (>1 is positive). But I don't have Raynaud's or visible calcinosis.
The rheumatologist was thorough with the usual checklist but said the skin tightening on hands was not scleroderma, but Dupuytrens. He literally mumbled that.
My body hurts all over. I have had "lupus" for 20 years, breast cancer, 7 spinal fractures and generally do not complain. I keep telling doctors that this summer something is different- worse.
I made an appointment with my primary care NP who I like, to go over all the tests other docs want (so many repeats) and say I just want pain relief. Time will tell on the scleroderma. General rheum's don't always know much so I am waiting for appt. with scleroderma center in October.
Meanwhile my hand is tightening every day and hurts quite a bit. Thanks!