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National Jewish Health Helpful Tips and my recent experience

MAC & Bronchiectasis | Last Active: 3 hours ago | Replies (42)
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Profile picture for Rick @rstel7272

For me, it was not. All were negative for me. I don't have gerd, no family history of gerd, I had MAC 4 years ago that was aggressively treated. NJH ordered all these expensive tests and I went along while they ignored my real issue of lung cavitation and a fungal infection.

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Replies to "For me, it was not. All were negative for me. I don't have gerd, no family..."
healthybon | @healthybon | Jul 12, 2023

Hi there... are u now Mac free? What treatment did you get? What did you do for the cavities? Fungal?

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visions63 | @visions63 | 16 hours ago

@rstel7272 I had Cavitary NTM and could not even take antibiotics for 2 weeks.I had a Robotic, wedge, lung resection done at NYU . My 3 cm mass was totally encapsulated and easy to take out. I was told by the surgical team that antibiotics never would’ve worked anyway, because it never would’ve penetrated the encapsulated mass.. I had no symptoms before surgery and have no symptoms post surgery…… My NTM was found on an incidental finding of a chest x-ray.
I will be following up within six months of another CT scan ….other than that no meds, other than treating my asthma. I do have acid reflux and was on a PPI for many years, and now have developed gastric polyps as a result of taking PPIs.,so I stopped .I am not sure of the relationship with acid reflux and NTM but I will ask pulmonologist today at NY U . There is a dedicated team that worked with this disease at NYU in New York.

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