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@bradninchgirl

Gentle exercise and use hiking walking sticks to help with stability. Go on line as you can find exercises that will help with stability. I walk around my garden. It's not big but i can manage half an hour in it right now. i have found that my muscles are much weaker than before. Some of that could be old age, 78. . I am glad I was really strong before as I would be in a wheel chair right now. Don't give up, there is an end. After 4 years I am now getting better. I didn't know about the fussy diet you have to eat at the beginning and that delayed recovery as all my favourite foods are on that do not eat list. What has probably taken me so long is that I have actually probably been ill for 20 years but doctors didn't recognize it. Had to give up working in 2001 as I couldn't stand it any longer. Right now I am glad to say that pain and exhaustion is almost at zero. Now I have to find the courage to give up prednisone. Keep on looking forward. We wish you all the best.

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Thanks so much for the reply. You have given me hope! I think I should be walking more even if it is painful. And doing stretches. I so look forward to a time when it will be easier. I don't expect no have no pain in walking but just to have it a little better would lift my spirits. It came on suddenly and the first two months were wonderful on 20ml steroid but not now. I will look forward.