Hello @habibahsan and welcome to Connect. I'm so sorry to hear of all of the physical difficulties you are having now. I can certainly understand your concern in finding a good treatment plan.

My journey with a NETs diagnosis, of the upper digestive tract, began in 2003. I've had three surgeries since then. So, at this point I am a 20-year survivor of NETs and doing OK. There are so many treatments to slow NETs growth and to help with the symptoms and a NET specialist would be your best choice. Once you consult with a NETs specialist you will learn about which treatment would be best for you.

I am not a medical professional, so I can't answer your specific questions, but I do understand your concern. I would definitely recommend that you see a NET specialist. Mayo Clinic has three campuses in the U.S. (Florida, Minnesota and Arizona) that have excellent NET specialists. Here is a link to appointment information including information for international patients, http://mayocl.in/1mtmR63

Also, here is a list of NET specialists, worldwide. After the U.S. doctors are listed, there is a list of international NET specialists.
--Find a Doctor:
https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
I would urge you, like @californiazebra, said to learn as much as you can about this rather rare type of cancer and to visit a NET specialist as soon as you can for a consultation.

I look forward to hearing from you again. Will you update me with any other questions or concerns?