Hello @marymckeith, It sounds like you may be tapering too fast. I started at 20 mg prednisone both times when my PMR was active. The first time it took me 3 and half years to taper off. My rheumatologist told me I need to listen to my body and only taper when the pain was under control. He had me keep a daily log with my level of pain when waking up and the amount of prednisone I took for the day. You might find the information in this reference helpful if you need to discuss the tapering with your doctor.

--- GCA & PMR - Treat-to-target recommendations in giant cell arteritis and polymyalgia rheumatica: https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429.

Do you keep a daily log?

Gentle exercise and use hiking walking sticks to help with stability. Go on line as you can find exercises that will help with stability. I walk around my garden. It's not big but i can manage half an hour in it right now. i have found that my muscles are much weaker than before. Some of that could be old age, 78. . I am glad I was really strong before as I would be in a wheel chair right now. Don't give up, there is an end. After 4 years I am now getting better. I didn't know about the fussy diet you have to eat at the beginning and that delayed recovery as all my favourite foods are on that do not eat list. What has probably taken me so long is that I have actually probably been ill for 20 years but doctors didn't recognize it. Had to give up working in 2001 as I couldn't stand it any longer. Right now I am glad to say that pain and exhaustion is almost at zero. Now I have to find the courage to give up prednisone. Keep on looking forward. We wish you all the best.