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High or Fluctuating Chromogranin A Level: What does it mean?

Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)
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@hopeful33250

Hello @debona2113

I am sorry to hear that you are still struggling to get a diagnosis for these health issues you are experiencing. Has anyone suggested a Gallium 68 PET scan? Here is some information about this scan that is the best at detecting NETs and/or carcinoid tumors. This test is more effective than the Octreoscan or an MRI.

--69 Gallium Dotatate PET
https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/

How much weight have you lost since these symptoms began? Are you able to get a second opinion at a research-oriented medical facility such as a university medical school or a facility like Mayo Clinic?

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Replies to "Hello @debona2113 I am sorry to hear that you are still struggling to get a diagnosis..."
debona2113 | @debona2113 | Jul 12, 2023

Oh yes 32 lbs loss sine January 2023, can't do more than 2 bites here and there causes fullness and nausea.

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