@goldacharma
Hello, I would be glad to answer any questions relating to my symptoms, diagnosis and treatment of CIDP. I have been receiving IgG infusions for approximately one and one-half years and I current get an infusion every two weeks. Once the infusion is completed I do have severe symptoms such as numbness, tingling, and pain for about 30 minutes to an hour and then my symptoms seem to subside for about 10-12 days and then they return and it is time for infusion again. I initially started infusions once a month and had to go to every two weeks to manage symptoms. Currently, I have improved so much from the day I started infusions but no I am not back to were I was prior to my COVID-19 vaccine. I had my first COVID-19 vaccine and about 15 minutes after I started to have numbness in one of my legs and foot and it progressed to all my extremities over a period of 2-4 weeks. I was told it was not related to the vaccine and to get the second vaccine and I did and I am sorry I ever listened to the vaccine team. I am an anesthesia provider and I had no choice but to get the second vaccine or I would have not been allow to practice. Over a period of 4-6 weeks I had weakness in my legs and had difficulty walking and going up and down stairs, over time severe pain developed and no one was able to diagnose my disease. My primary care MD told me to give it some time and I eventually took matters in my now hands and found a neurologist that started tests and treatments, so all and all it took about a year to diagnose and start treatments. I hope you have a good infusion, I know it is scary the first time, let me know if I can help in any way.
Kim