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MAC & Bronchiectasis | Last Active: Sep 25, 2023 | Replies (81)
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Enjoyed reading your post. My first pulmonary doc never gave me any literature or sites to go to for information. He never said anything about flutter devices or even nebulizing--antibiotics. His final comment, "I don't think I can help you." BTW no referrals either. I might as well had been seeing a veterinarian. Finding this forum and becoming an internet searcher is what I had to do to get help (found a doctor thru here) and get better. Appreciate all the tips, hints and accidental discoveries.
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Yes, I find it astounding how little some pulmonologists know! Mine never mentioned a word about nebulized hypertonic saline or airway clearance techniques. I am now streaming the 6th World Bronchiectasis Conference being held in New York. One comment, from a foremost expert/researcher was "Bronchiectasis is a much neglected disease." It is inspiring to see experts from all over the globe coming together to shine light on BE and NTM. And, agreed, thank goodness for our Mayo Clinic group. I've received such important information regarding the management and treatment of BE and MAC. Thank you everyone!