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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: 5 hours ago | Replies (1098)

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@cipnsue

I too have a redundant/tortuous colon. I get so tired of trying to get people to understand why I eat the way I do and why a laxative or whatever doesn't work for me - but you look so good(they say!) This all started after my appendectomy when I was 9. By 16 I was covered with abdominal adhesions and had emergency surgery resulting in a too long and twisted colon. Add on 3 more surgeries for Ovarian Cancer and a colonoscopy diagnosing a tortuous colon. After my last surgery in 2016 (8 hours of cutting out scar tissue & cancer) my gynecologic oncologist said "no more colonoscopies or surgeries, it's too dangerous." I have tried it all: hi fiber/low fiber, no flour products, no meat and everything on the market including prescription (Linzess was a total failure). I also have chemo induced peripheral neuropathy in my whole body. I exercise daily. Since 2014 I have lost 30 pounds and medical documents identify me as having anorexia (not anorexic). Gastroenterologists ask, "What do you want me to do, look at your medical history." So, yes, I have a redundant/ tortuous colon. I can't travel and I only eat salads (occasional soup) when we go out to eat. I get so excited on days I don't have to use a suppository or an enema and actually have a bowel movement on my own:)
Seems like I've said too much. It is good to know that others have these problems.

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Replies to "I too have a redundant/tortuous colon. I get so tired of trying to get people to..."

I'm just finding out I have this. according to my radiologist who read my xray to look at a kidney stone. I was shocked and I'm clueless about this thing.