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One-week pre Autogolous BMT: I'm afraid I'm not prepared

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jul 24, 2023 | Replies (34)
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@papad

I wish I had seen this earlier. I’m praying for you now.

I’d say have the shower stool ready just in case.

My husband had an auto BMT 2/23 and we had the benefit of talking with someone who was two months ahead of us. It’s scary and not fun, but the info Mayo shared was accurate for us. You feel awful for several days, and then when your blood counts start to increase things get better daily. It’s slow, but it happens. We are willing to talk with anyone who would like to hear our experience.

This is an NPR article We were interviewed for. https://www.npr.org/sections/health-shots/2023/04/29/1167392633/hospital-at-home-remote-care

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Replies to "I wish I had seen this earlier. I’m praying for you now. I’d say have the..."
Colleen Young, Connect Director | @colleenyoung | Jul 10, 2023

Hi @papad, I'm so glad you and your husband were able to take advantage of Mayo Clinic's Advanced Care at Home program. Thanks for sharing the NPR article.

As you experienced first hand, it is so helpful to hear from others who have walked the path before, especially with an experience like cancer and BMT. You'll notice that I removed your phone number from you post since Connect is a public forum. It's better to use the secure private message function to share personal contact info. However, I would like to point out that by sharing on the forum here, your messages benefit many and we can all learn from each other.

At what stage of the BMT process did your husband's care transition to Advanced Care at Home rather than in the hospital? How is he doing now?

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