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Autoimmune Diseases | Last Active: Mar 24 1:16pm | Replies (34)

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@jshdma

@cgrogers Can you tell me what were the symptoms that led you to a diagnosis of CIDP?
Also, do you have to have infusions forever?

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@jshdma
Hello,
I started to have paresthesia (numbness, tingling, and burning) in one of my lower legs and feet. This was immediately after my first COVID-19 vaccine. Then after my second vaccine two weeks later my leg and foot felt like it was on fire and the pain never stopped. I had weakness in my legs and was having difficulty walking up stairs and also loosing my balance. As time went on I was having the paresthesia in other extremities and in my face.
I went to my primary care doc and he just ignored my symptoms and said to give it time, after about 3months of this I consulted a few of my colleagues and I made an appointment with neurology and had an EMG, lumbar puncture, MRI, CT and multiple lab tests. BINGO diagnosis of CIDP

@jshdma
Sorry I did not answer all of your questions.My neurologist does think there is a high probability of infusions continuing for lifetime…..

Numbness, and lack of sensation in outer limbs and extreme fatigue. Some variants have a lot of pain also.
Mine started with an odd virus which caused daily migraines for two months then the numbness in the lower legs. When it spread the the lower arms and hands my neurologist had me hospitalized. But they were looking for a spinal issue or MS. A neurologist working the floors over Christmas was looking at my case and disagreed and did a spinal tap and nerve conduction test and found CIDP- further tests showed the Acute Motor Sensory Varient. I will have it for life.