← Return to CIDP Support Group

Discussion

CIDP Support Group

Autoimmune Diseases | Last Active: Oct 30 1:08pm | Replies (32)

Comment receiving replies
@jshdma

@cgrogers Can you tell me what were the symptoms that led you to a diagnosis of CIDP?
Also, do you have to have infusions forever?

Jump to this post


Replies to "@cgrogers Can you tell me what were the symptoms that led you to a diagnosis of..."

@jshdma
Hello,
I started to have paresthesia (numbness, tingling, and burning) in one of my lower legs and feet. This was immediately after my first COVID-19 vaccine. Then after my second vaccine two weeks later my leg and foot felt like it was on fire and the pain never stopped. I had weakness in my legs and was having difficulty walking up stairs and also loosing my balance. As time went on I was having the paresthesia in other extremities and in my face.
I went to my primary care doc and he just ignored my symptoms and said to give it time, after about 3months of this I consulted a few of my colleagues and I made an appointment with neurology and had an EMG, lumbar puncture, MRI, CT and multiple lab tests. BINGO diagnosis of CIDP

@jshdma
Sorry I did not answer all of your questions.My neurologist does think there is a high probability of infusions continuing for lifetime…..