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Odontogenic keratocyst

Head & Neck Cancer | Last Active: Jul 11, 2023 | Replies (10)

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@cmcail

I started having neck gland soreness in January and my primary Doctor went through the usual treatment methods, but finally had a Head and Neck CT in May which identified a possible aneurysmal bone cyst. Was sent for an MRI in June which came back as possible, odontogenic keratocyst or ameloblastoma. Two days after a consult with Head & Neck at university hospital, I developed a "superinfection" and it landed me in two local ERs because of excessive swelling and pain. It was scary to see this morphing occur so quickly from a slight swelling in the left jaw to a "Fiona" look (Shrek-reference). Being a holiday weekend before the 4th of July did not make navigating easy, but I was directed to the ER at the university hospital and admitted. My blood pressure was really high 160s/120s probably due to the pain, but then it bottomed out at 75/38 while I was in the ER. So glad I made it there before that happened.

Two days later, this past Wednesday, I was in the OR for a biopsy and possible removal of the OKC. Unfortunately, that is not what happened. so now waiting for bone biopsy results and review of treatment plan for Thursday. I am scheduled for mandibular resection once I get through all of the appointments with the rest of the Head & Neck team. I watched the process of a resection, and bone grafting. It amazes me that this can be done! So, really hoping for a benign result this Thursday.

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Replies to "I started having neck gland soreness in January and my primary Doctor went through the usual..."

Hi @cmcail
I have had the mandible resection done two and a half years ago up at Mayo Rochester. If you have any questions or concerns please don’t hesitate to ask.
You have been through the mill already so hopefully this is the final battle.