Highest blood pressure I have had to date is had is 247 over 185, you can feel your hair grow literally. Heart rate can go up to 190 and drop back in the double digits. GA68 did not find anything below the shoulders. Extremely episodic though. No pattern. I have had ultra low blood pressure since childhood, 105 over you can barely hear, two different types of migraines, developed a third one in the last 20 months.
Yes plans to remove the tumor. I do want to find out what makes that thing tick or what else besides the tumor can spin things up like that.
Dumb question on your SDHA, is yours hereditary? What kind of a mutation? When you found out, did you test for other mutations, non NEC? I have been told there are 80 some of them. SDHB mutation can trigger kidney and GIST cancers. They just removed three cysts from my kidneys past Friday. Sorry for the million questions and thanks very much in advance. V