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MM Stage 6 done, any thoughts--BMT or monthly treatment?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 24 9:46am | Replies (10)
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@tlgreen12605

Thank you. Not sure what car-t is but will look it up. During the 6 years cancer free did you have treatments of any kind? I am velcade and darzalex and revlimid, and steroid. And I am not sure what treatment is next step..revlimid or velcade once a month. I see doctor in 2 weeks and he will refer me to others if I want to do sct. Haven't decided.

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Replies to "Thank you. Not sure what car-t is but will look it up. During the 6 years..."
Chris, Volunteer Mentor | @auntieoakley | Jul 9, 2023

My husband has had treatment free time. Including a 6 year block and a 3 year block. He has spent more time with no treatment than on treatment. They told us at the time when he was diagnosed that he could expect to have this disease managed for life. We really like to take advantage of treatment free time.
Have you been on IMF to read up about myeloma?
https://www.myeloma.org/?utm_medium=cpc&utm_source=microsoft&utm_campaign=paid-brandimf&utm_content=bing-brand&utm_term=rsa&msclkid=a0fccd26304e1a9c3b10a98cc81d7e9b
We attended a patient and family seminar and learned so much. Then we took that new found information with us to Mayo Rochester when he was evaluated, I can’t begin to tell you how helpful it was to have all of that information.
If you are considering ASCT, do you have a location picked out or approved?

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cat1952 | @cat1952 | Jul 9, 2023

Hi
I was on maintenance velcade shot once a month then in 2021 I was changed to ninlaro because the velcade was causing neuropathy. I also go xgeva injection once a month
Car-t cell is when they harvest your T cells then genetically alter them to kill the cancer cells.
Good luck and prayers for your journey

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