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Anyone out there on Guanfacine?

Post-COVID Recovery & COVID-19 | Last Active: Sep 26 10:13pm | Replies (65)
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@ripley

What has your experience been with LDN as far as your starting and mtc doses, side effects, and how long before you got pain relief (are you taking it for fibro)? I started yesterday for fibro pain at .5mg for 7 days and then increasing by .5mg every week up to 4.5mg. I was already having muscle pain, but it got progressively worse yesterday, lasted all night and today continues with severe muscle pain all over. I decided to skip my LDN today until tomorrow when I can talk to the pharmacist. Thanks.

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Replies to "What has your experience been with LDN as far as your starting and mtc doses, side..."
emo | @emo | Jul 9, 2023

Hi! I wrote about it in more detail here: https://connect.mayoclinic.org/comment/882778/

I can't say I noticed much in the way of relief from pain with the LDN, but I felt improvement in fatigue immediately. But it's one of those things where it could be gradual and I might not notice and/or I'm doing other things for chronic pain at the same time (mostly physical therapy grounded in retraining the central nervous system and how it processes pain).

I dunno if you've come across this thread before, but it may be helpful because it's about LDN dosing specific for fibromyalgia: https://connect.mayoclinic.org/discussion/ldn-dosing-for-fibromyalgia-and-mecfs/

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talford | @talford | Jul 10, 2023

I tried LDN some months ago. Whenever I got up to 3 mg, much less, the 4.5 mg, I would have a serious headache (one of the issues I was seeking to treat) so I had to stop.

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