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Adenocarcinoma - newly diagnosed
Lung Cancer | Last Active: Jul 17, 2023 | Replies (164)Comment receiving replies
Hello- My name is Merry, and I am one of the Mentors for this group. My first lung cancer was in 1981, and I have Multi-focal adenocarcinoma. I have met some of you before. It is an adenocarcinoma, and many of the treatments can be tough. I've had two lobotomies and 3 SBRTs, the last one last October. My chemo wasn't as bad as the previous radiation that I had last October.
I had a horrible time as I also, it seems, have sensitive lungs and wound up on prednisone and oxygen for many months. But I did heal and am no longer on either of them! This Tuesday, I have my first follow-up CT since the radiation. Since I live in the North East, I go to Mass General in Boston.
It's been a very long haul for me, and this year I also lost my caretaker and husband of 45 years. It was the first time that I had to care for myself. It was hard and miserable. And tomorrow will mark 3 months since I lost my husband. I'm bringing my younger sister with me in case...I surely don't want to be alone.
There's no way around it, Cancer sucks, and treatments can be awful. I've read that some of you use Omeprazole. I was on it for many years but had to get off of it because it wasn't advisable to take it with Prednisone. I was switched to Pantoprazole. I find that it is much better and have heard many people say that. I rarely have breakthrough GERD now. Or, maybe I've had GERD so long I don't have a stomach either? lol
I'll try to catch up and get to know you all as much as possible. Please feel free to ask me questions. I will try and match your names to your cancer-but no promises!
Merry
Replies to "Hello- My name is Merry, and I am one of the Mentors for this group. My..."
Hi Merry,
I came to know that your cancer was detected in 1981.which stage it was and now. What type of food you are taking ? Kindly tell me . My wife was diagonished stage IV lung cancer in March,2023 and she is taking Tagrisso. Now she is almost Ok.
Surajit
Hi Merry,
I am so sorry for your loss.
Sending you love and hugs,
BPB13
Merry, I am so sorry for your loss. It leaves a big hole in one's life. Know that you have given many of us help.
Merry, you are so brave and I too am so sorry for the loss of your husband. I have been married 45 years as well and I'm certain if I lost my caretaker it would be devastating. We already go through so much. I'm happy you have your sister to help you. I have a dear friend who took me to my chemo appointments and she has also offered to bring me to my immunotherapy appointments once a month for a year - starting in August. I will surely ask about Pantoprazole as I don't think the Omeprazole and the Sucralfate do much...I still have GERD, perhaps not as bad since the radiation treatments ended, but I can still notice it.
Good luck on your CT scan (tomorrow??). Please let us know how you make out. I will get mine at the end of this month.
Best wishes your way..
Sandy
Merry,
I've seen your posts since my first round of cancer in 2018. My deepest condolences for your loss.
If I don't have someone with me, I ask my doctors if I can record the meeting and just use my phone's Note app. Nowadays, the majority of them agree. They know we can't remember everything.
My lastest upper GI revealed that I have Barrett's syndrome, which means some of my esophageal cells have tried to turn themselves into stomach cells because of long-term GERD. In my case, about 30 cm or 12 inches of my esophagus! Of course, those cells can develop their own form of cancer, so now I'll get an upper GI every year to check. I'll add it to the list!
I take 40 mg Esomeprazole in a pill every morning at least an hour before eating or drinking anything else. I've also gone Gluten-free and start every morning with a tablespoon of psyllium (Metamucil). The gluten-free idea came from my primary care as he speculated that my Tagrisso-suppressed immune system may have led to mild IBS. These three actions have kept my GI tract quietly normal for a few months now. I hope this helps you and others.
Connect
Hi Merry!
I’m so sorry for your loss. My husband is my Caretaker too. It’s scary because he is 14 years older than me and has health issues of his own. We’ve been together for over 38 years. He was I. The Hospital after having a quadruple bypass surgery when I first started finding out about me. I’ll be praying for you. And my Oldest sister goes with me a lot because my husband is still going to Cardiac Therapy.
Donna