← Return to Anorexia & nausea 3 months after esophagectomy

Discussion

Anorexia & nausea 3 months after esophagectomy

Esophageal Cancer | Last Active: Aug 1, 2023 | Replies (25)

Comment receiving replies
@mrgvw

Come chat with me. I'm no miracle worker... just an EC patient... still on my own journey, now 3 years post-op. It is a bitch! But do-able.

I'm interested in the term anorexia here... as if this is self-imposed? Sorry... most of us post-op, early on, well... I wouldn't describe us as anorexic. We simply have other issues related to the surgery and trying to get digestion working once again.

Anyways... here if you need me. Much to discuss.

Gary

Jump to this post


Replies to "Come chat with me. I'm no miracle worker... just an EC patient... still on my own..."

I am possibly using the word "anorexia" as shorthand for just having no appetite at all. No hunger at all. No motivation to eat or to want to eat. On top of that, he has constant nausea whether he eats or not. And even if he drinks just a little Boost or Ensure, he feels extremely sick, and this is true every time he eats anything at all. I apologize if I'm using the term anorexia incorrectly and maybe I can and should find a different term that doesn't include the implications about deliberately intending weight loss, etc., which he isn't doing. And thanks for asking for a clarification. I didn't realize it meant more than just "not wanting to eat" and so I'm wrong there. [EDIT: I just Googled "medical term for no appetite" and saw this: "The medical term for a loss of appetite is anorexia." So I guess it also means just not wanting to eat.]

I posted here hoping to see if there was anyone else with direct experience with this and had a suggestion about what could work. I can't poke or prod his "team" at NYU unfortunately. But I can make suggestions to my friend to carry in to his meetings with doctors or to make special appointments to address these concerns. His brother has recommended a feeding tube and there are a few folks here who have supported this idea. So if I can call him and let him know it might make a difference and give him examples of people who it has helped and how, it might motivate him to actually let them do it.