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← Return to Kevzara (sarilumab) to treat PMR
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Kevzara (sarilumab) to treat PMR
Polymyalgia Rheumatica (PMR) | Last Active: Apr 4 7:55pm | Replies (156)Comment receiving replies
This is hopeful! I am having some pain again now -- I didn't realize that there are ups and downs with inflammation so I am trying to stay calm. A headache.
I am grateful for this support group -- thanks to all of you. So here is some humor!!!! I am trying to follow the anti-inflammation diet, no red meat. So I just woke up having dreamt that I went to restaurant after restaurant ordering a steak! Thick, so a filet mignon. Medium rare. Perfectly grilled. One of the places was named the same as one my family went to when I was growing up in Miami -- the Embers. Now I am awake, craving a steak.
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@paulagcl and others -- I have (finally) found a second person i know who has PMR! His experience, however, is unlike my cousin's. My cousin tapered off successfully in about 1 year with no relapse - his PMR occurred about 10 yrs ago though.
For my other friend, the onset was 3+ years ago , before the pandemic, and he is unable to taper below 7.5 mg. I was searching through our CONNECT conversations and found helpful info to send to him - including that patients are now on KEVZARA! So Paula - how are you feeling ?? Good I hope : )