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Anastrozole weaning.

Breast Cancer | Last Active: Aug 19, 2023 | Replies (39)

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@ginip

I got as much feedback from medical advisors in stopping taking Anastrozole as I did starting it - Not much. I felt like I got the same info that an adult gives a child - what is going on is no big deal and offer a bandaid (Tylenol and Bengay). In their effort to get us to the 5 year plus goal, our ability to analyze and determine what is best for our added quality of life consideration is insignificant or at the very best of limited consideration. It is a hard and lonely decision to make and not made casually.

Having said that each of us experience some form of side effect(s) that bring us to the point of deciding not to take Anastrozole. My stop date was April 3, 2023. Many of the more manageable side effects stopped within a couple of weeks. However my most problematic side effects (brain fog and muscle/joint knee pain) continued which caused me confusion and concern. My research gave me a very welcomed perspective that said these particular side effects can take 2-3 months to recover. I am so happy to say i am sharing this comment feeling relieved of these last two side effects and celebrating g every day.

I found side effects are associated with starting on Anastrozole. When you stop taking it you experience the recovery at different instances. I would not call those side effects. It is more the timeframe of recovery.
I want to emphasize the burden of arriving at this decision. I don’t think any of us make it casually. In the end I would hope that pharmaceutical companies and medical prescribers will, going forward, consider that we hopeful users have their quality of life as a reasonable side effect to mention up front!

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Replies to "I got as much feedback from medical advisors in stopping taking Anastrozole as I did starting..."

@ginip How long had you taken Anastrozole? I so agree with your comment. I took for 2 1/2 yrs and stopped. That decision is not an easy one but my quality of life is important snd it really improved when I discontinued Anastrozole. My life as I knew it prior to breast cancer improved within 5-6 months. I’m proactive in my health & stay aware. Blessings

Thank you for your thoughtful comment. I am struggling with side effects (I think) - brain fog, fatigue and the joint pain/stiffness is manageable. It's the cognitive and psychological (mood) that I'm trying to figure out if it's the anastrozole or something else. I've been on it now for 2.5 years. Sitting still at my desk, working is very hard - I feel like jumping out of my skin, difficulty focusing. When I'm moving in my garden, walking - I feel more like myself. Thank you for sharing, I feel like my Dr. has led me to believe that these SE's should improve over time.

Bravo. Much in common. 7/5/23 at 6.5 years and I'm worried, thinking I need to stay on it. Side effects were too much for me eventually. Especially joint/muscle pain enough to make getting out of bed in the morning really difficult. I still have some pain, but probably 1/2 as much. The brain/memory problems remain. I wanted help from the myriad medical people with no luck. Trust the BCI?