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Has anyone been prescribed EB-N5?

Neuropathy | Last Active: Jun 9 9:30am | Replies (87)

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@njed

@ray666 -Ray - two "if's" to think about. Just curious..... IF you want to know your B-6 level....is it possible that IF your neurologist ordered a B-6 test, it might be covered by insurance due to the peripheral neuropathy diagnosis coupled with a blood test ordered by a neurologist. I use an inhaler for seasonal asthma. My PCP ordered Ventolin HFA. Insurance said no, but allowed something that does not work as well for me. My wife and I have same insurance, she too has seasonal asthma. Her pulmonary doc ordered Ventolin, HFA and went right through. All we can figure is that it might have to do with who ordered it. Or did I get an idiot at the insurance company who rejected my med?

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Replies to "@ray666 -Ray - two "if's" to think about. Just curious..... IF you want to know your..."

Good for you, Ed (@njed): Getting those labs done––and my congrats on your good B6 level. Well done! And thanks for asking your PCP if there might be a relationship between PN and swollen ankles. I'm beginning to think there's no relationship, at least in my case. Reading the many responses here on Connect, it seems, once again, my case may be an oddity. I'm now thinking my swollen feet may be unrelated because, unlike the symptoms others have described, I have no pain: no pain, no flare-ups at different times of day, no itching, burning, no discomfort walking, sleeping, etc.––just my funny-looking puffy feet. My situation may be nothing more than a manifestation of how I balance my water consumption (in this hot weather) and my salt intake (because of hypertension, I've been on a lo-salt diet for years). You read my mind regarding my getting my B6 checked and have it covered. I'll be phoning my neurologist tomorrow and meeting with his PT guru, and if I succeed at getting him on the phone (or my "friend" Dave), I'm going to ask if he might write an Rx so that I could have my level checked. We'll see. I think my PCP might give me that Rx if I remain patient and ask her when we meet for my annual in September. ––Ray (@ray666)