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Seeking a second opinion

Pancreatic Cancer | Last Active: Jul 19, 2023 | Replies (24)

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@stageivsurvivor

I had the original formulation of Folfirinox that was 20% higher concentration than (m)Folfirinox in use since 2018. I had 24 cycles in groups of six with alternating groups of just 5-FU/Leucovorin to lessen the cumulative effects of neuropathy from oxaliplatin. That alternate dosing helped in the peripheral neuropathy from becoming severe and permanent. It resolved but took several years.

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Replies to "I had the original formulation of Folfirinox that was 20% higher concentration than (m)Folfirinox in use..."

I forgot to ask you, I am sorry - did you receive any naturopatic treatment during chemo (IV , nutrition support, immune system support etc? )

Anything that helped with the neuropathy? I have read that it may get worse before improving. It is worse since I stopped 2 1/2 months ago. Anything that helped? Pain is not an issue, just loss of function.

Is there a way to protect your hands and feet from neuropathy during the actual chemo - when you get Folfirinox at the hospital and the next 46 hours? Compressing socks, gloves, ice?