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Anyone have swelling with liver metastases?

Neuroendocrine Tumors (NETs) | Last Active: Aug 5, 2023 | Replies (16)
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@mmckeone

I'm in the same situation. Lasix not helping. Started in legs then around waist then abdomen. I am waiting to be scheduled for right side heart valve replacement and bypass due to some blockage found during a heart catherization. I am currently treating with lanriotide a hormone therapy that is supposed to stop the NET from producing serotonin and spreading. Hoping the surgery takes care of the abdominal fluid. Anybody with similar experience?

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Replies to "I'm in the same situation. Lasix not helping. Started in legs then around waist then abdomen...."
Colleen Young, Connect Director | @colleenyoung | Jul 22, 2023

Hi @mmckeone, have you been schedule for heart valve replacement? @hopeful33250 may have some experience to share with you.

How are you doing?

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Teresa, Volunteer Mentor | @hopeful33250 | Jul 22, 2023

Hello @mmckeone and welcome to the NETs support group on Mayo Connect. From your post it appears that you have been treated for NETs and are now experiencing heart valve problems.

Please share, as you are comfortable doing so, how long you were diagnosed with NETs and if you have had any surgery for the NETs. Are you currently seeing a NETs specialist?

As you are experiencing heart valve problems, do you have a surgery date scheduled yet?

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