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NTM and Hawaii

MAC & Bronchiectasis | Last Active: Feb 25 5:20pm | Replies (15)

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@halford

I live in HI and am aware of Hondas study of bacteria in the water and soil. But you can still enjoy the islands. I am careful to mask when I work outdoors and with the soil and dust off and wash the cloths that I wear. I get hot water when going to a restaurant or bottled water and I clean my shower heads with antibacterial sprays. I think that shower heads and bacteria is everywhere besides HI. Just think that now we find that plastic invisible particles is everywhere. Hawaii is a wonderful mild climate with an ocean that filters clean air and generally we dont have the heatwaves large parts of the country is going through. I like what Sue often emphasizes that we should be reasonable as we live. I have had Bronchiectasis/MAC beginning three years now and so far all I do is to nebulize with 7% saline and .5% budesonide. Walk every other day or go to the gym and do yoga with inversions to get rid of mucus. I am 79 and so far I been managing.
Hal

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Replies to "I live in HI and am aware of Hondas study of bacteria in the water and..."

Hi Hal,
I appreciate your posting. It makes me happy just reading it. The simple living style of the island alway appeals to me. I love being there, being there makes my heart sing. We spent some time on the island every year for many years, but last year I cancelled our trips after just being diagnosed with bronchiectasis and reading all these research papers. It seems so many odds work against me. On top of the risks for other people, I am Asian and thin, but not very thin though. So far bronchiectasis has not prevented me from doing the things I love, travel, hiking, seeing movies, going to concerts and dining out. I would be very sad to give up Hawaii. I do believe that the unique climate and unique soil composition made Hawaii a hot spot for NTM. But I don't know if we take the measures we take in the mainland, will that be enough? Your experience might give some proof. Since your diagnosis of MAC and bronchiectasis, have you noticed whether your conditions progressed? Have exams indicated any progression?
Anyway, many thanks again for sharing your life experience in Hawaii.
Take care!
Ling