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Kevzara (sarilumab) to treat PMR

Polymyalgia Rheumatica (PMR) | Last Active: Apr 4 7:55pm | Replies (156)

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@paulagcl

He started me on 20mg prednisone. I was feeling dizzy so he cut it back to 10. Meanwhile I was setting up getting the Kevzara paid for and ordered, so Istarted that about two weeks later, I think it was. The idea is to wean me off the cortisone. I am on 9 mg right now. So far so good and I finally got brave enough to give myself an injection--before that I kept going into the drs office until I could see his nurse was done with that!!!

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Replies to "He started me on 20mg prednisone. I was feeling dizzy so he cut it back to..."

WOW !
I told @paulagcl Paula in a private message that she was the PMR patient of the future ! NO fooling around with Prednisone tapering -
ha ha your reply about the nurse is funny ! i think i would be squeamish, too ,about learning to inject myself ! Be Brave - and best of luck !!

At the European Meeting of Rheumatology this past May - the follow up to the Saphyr trial was presented - i will attach the abstract below .
The American College of Rheumaotlogy Meeting will be in SanDiego in Nov !

SUSTAINED REMISSION FROM WEEKS 16 TO 52 AND WEEKS 24 TO 52 IN PATIENTS TREATED WITH SARILUMAB: POST-HOC ANALYSIS OF SAPHYR TRIAL IN PATIENTS WITH POLYMYALGIA RHEUMATICA

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SUSTAINED REMISSION FROM WEEKS 16 TO 52 AND WEEKS 24 TO 52 IN PATIENTS... (SUSTAINED-REMISSION-FROM-WEEKS-16-TO-52-AND-WEEKS-24-TO-52-IN-PATIENTS….pdf)