← Return to Trigeminal, but not Trigeminal Neuralgia. What is it? HELP

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@fdouglass

I completely understand. I had a great PCP that was genuinely trying to help. Then she took another position as an er doctor. All the other doctors either pass the buck and send me to another specialist saying it is not something they treat or say "oh, it is just migraines". It for sure causes migraines rains. But, it is not just migraines. How do you find a doctor that deals with crazy sinus issues not caused by your sinuses. I hope you find your answers soon.
Thanks @johnspirit2

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Replies to "I completely understand. I had a great PCP that was genuinely trying to help. Then she..."

There is a Mayo Clinic doctor at the Jacksonville, FL location who writes he is "interested" in hemicrania continua. That doctor is Dr. T. Rozen. I've never seen him. Do you know the Latin expression sin qua non? That means "without which, not." So, the confirmation for hemicrania continua (HC) is if your headaches are helped by indomethacin, that means you have HC. And if I apply the sin qua non correctly: without help by indomethacin, then you do not have HC. Writing here because I also heard "oh, it is just migraines"--that anyone would dismiss migraines with "just migraines" is uncaring/unknowing. Migraines hurt. HC hurts a lot and is continuous. Many doctors do not yet know about it. Read up on it so you can help yourself. I've had headaches for decades, *maybe* both migraines and HC--how to separate types of head pains? Indomethacin has helped me. As with most drugs there are side effects. Start reading and help yourself and your doctors. I showed up to a neurologist appointment with a printout of a medical paper I found on the internet. For HC, look for Dr. S. Prakash in India. I found his paper, perhaps 4 years ago, it matched my symptoms. I also have chronic nasal congestion, by the way.