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Anorexia & nausea 3 months after esophagectomy

Esophageal Cancer | Last Active: Aug 1, 2023 | Replies (25)

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@caregivernle

Yes of course he did see a dietician specializing in oncology as part of his team at NYU. Basically all the dietician did was tell him to eat small meals, avoid eating late in the day, and avoid fatty foods. The dietician did not get involved after that and has not been proactive despite the fact that his oncologist and surgeon there know he is not eating and not hungry. He had a stay in the hospital as a result of the anorexia. The oncologist there prescribed him dronabinol which did not work for him. And yes he has a team that includes all of the people you mention, however the team is not giving him all the help he needs. Otherwise I would not be posting here for support. His hospital is NYU, one of the leading hospitals, however no one on his team is proactively reaching out to him, and because he has no energy and is losing hope, he is not in a position to reach out himself. There is no patient advocacy happening there on a proactive basis.

I am sorry you felt the need to delete my post. I did not find his comments helpful or insightful and they did not share any personal experience, and also I don't tend to find people who write things like "r u" for are you to be very educated. I am at a point of frustration and looking for actual help from people who have something actually helpful to contribute, like the other two kind folks who responded. I have to say I also found your scolding of me here not terribly helpful either, and also condescending. I don't think I'll be posting here anymore.

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Replies to "Yes of course he did see a dietician specializing in oncology as part of his team..."

Come chat with me. I'm no miracle worker... just an EC patient... still on my own journey, now 3 years post-op. It is a bitch! But do-able.

I'm interested in the term anorexia here... as if this is self-imposed? Sorry... most of us post-op, early on, well... I wouldn't describe us as anorexic. We simply have other issues related to the surgery and trying to get digestion working once again.

Anyways... here if you need me. Much to discuss.

Gary