← Return to CAR T Therapy at Mayo Rochester: How long will I be there?

Discussion

CAR T Therapy at Mayo Rochester: How long will I be there?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jul 23, 2023 | Replies (19)
Comment receiving replies
@peggybyses

No one talks about affects of Car T does anybody have do they have weird things going on like shaking and getting dizzy or lightheaded and tiredness unbelievable

Jump to this post

Replies to "No one talks about affects of Car T does anybody have do they have weird things..."
Lori, Volunteer Mentor | @loribmt | Jul 8, 2023

Hi @peggybyses since Car-T therapy is still relatively new it takes time to find each other. I was the same way with my bone marrow transplant a few years ago. There were scant few of us. But now that they’re becoming more available we’re able to help others along their journeys.
That’s what Connect is all about…helping others connect with people walking the same walk.

@annberkowitz @grandpabob were recently talking about sensations they experience in this conversation. Hopefully they’ll be able to give you some more insights as well. (You can reverse the order of the replies to Newest to Oldest to get the most recent reply)
CAR-T cell Therapy: Joint and muscle pain
https://connect.mayoclinic.org/discussion/joint-and-muscle-pain-1/
How long ago did you receive your Car-T therapy? If you don’t mind sharing, what condition required the Car-T treatment?

VIEW AND REPLY
Colleen Young, Connect Director | @colleenyoung | Jul 22, 2023

How are you doing, @peggybyses?

VIEW AND REPLY